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September 23-24, 2019 | Prague, Czech Republic
2nd International Conference on
Palliative Care
Clinical Trials and Pharmacovigilance
Joint Event
&
Walking the walk of palliative care
Pastor Bruce Hanson
Society of Critical Care Medicine, Iowa
Within the confines of Academia and Research the
Human side of Palliative Care sometimes gets lost.
On a personal basis and as a Pastor, Care Giver and a Patient
Advocate I have gained an understanding of the dynamics
and humanity of Palliative Care. This personal evolvement
has been greatly influenced by multiple life experiences. As
a young man in my early teens the daily vigil with my dying
grandmother introduced me to a, up to then, life experience
that many young people don’t experience. Of course, this
experience was at a time when “Palliative Care” was neither
noted as such, nor fully understood as a needful concept.
As a young Adult, this self-development was more formally
influenced through classes in College and Seminary. This was
further influenced by multiple job experiences particularly
as a hospital orderly in the Emergency Room where
multiple facets of medical care came together and had to
be coordinated. This formal education time was further
influenced over the next thirty-eight-year span of time with
my involvement in caring for the families and individuals in
various churches. This involved dealing with the complexities
of long-term health and multiple medical issues for people
and families who were dealing with everything conceivable
health wise as well as life ending journeys, be it sudden or
over a long period of time
As a Parent and a Husband my personal walk was most
significantly influenced partly through my daughters’
premature birth, lifelong heart condition and multiple code
situations where life defining decisions that were called for.
This was further influenced via my wife (our whole adult
married life), her multiple medical issues and multiple “pull
the plug” events. At times, the coordination of up to twelve
doctors and numerous medical departments and multiple
medical facilities in many ways tested the limits of the
definition of Palliative Care.
AsPalliativeCareProfessionalsandResearchers,study,classes,
and roll playing can prepare one to be a care person who
addresses many situations much as a doctor or surgeon can
likewise learn. But the life experiences can never be taught.
They have to be walked. And the personal, human side of this
care must always be paramount, and it is to this point that all
Palliative Care Professionals must keep themselves focused
on. And it is to this point that I have become passionate at
keeping professionals focused on.
Speaker Biography
Pastor Bruce Hanson continues with his Patient Advocacy work as an
Ambassador for PCORI, a Technical Expert for several Medicare Study
groups through the Health Services Advisory Group (HSAG), a couple
of patient care study’s through Society for Critical Care and through
Northwestern University of Chicago. Additionally he serves on several
National Organizations as a Patient Advocate Advisor/Consultant
(Pharmacy Quality Alliance (PQA), Patient Family Advisor Network PFA
network, Institute for Patient and Family Centered Care (IPFCC), University
of Iowa City Hospital ICTS advisory board, and the HIT-PFCA that is working
on the development of Open Notes and the Patient Portal.
e:
Journal of Primary Care and General Practice | Volume 2
J Prim Care Gen Pract, Volume:2