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Page 17

September 23-24, 2019 | Prague, Czech Republic

2

nd

International Conference on

Palliative Care

Clinical Trials and Pharmacovigilance

Joint Event

&

Notes:

T

he numbers of childrenwith life-limiting or life-threatening

conditions is rising. Palliative Care for these children is

complex, it begins with diagnosis and continues through

a child’s life. At one end of the spectrum palliative care has

extended into antenatal, new-born and perinatal care, whilst

at the same time we are seeing the life expectancy of our

young people increase with many livings into adulthood and

transitioning into adult palliative care services.

We have seen a four-fold increase in the number of children

dyinginthehospice,alongsideanincreasingacuity,complexity

and case mix. In addition, we are experiencing an increased

demand for outreach and community services, alongside a

resduction in community pediatric teams.

Our workforce comes from a range of disciplines including

health visiting, pediatrics and learning disabilities. Whilst this

diversity has been invaluable in bringing together a range of

skills, many of our staff’s core skills are rooted in the traditional

short break/respite model of care. Using a validated tool, we

have interrogated our activity, reviewed our dependency

tool and looked at the impact of professional judgement

on keeping our staffing levels safe while we develop the

workforce’s skills and competencies in response to a changing

model of care.

Speaker Biography

Dee Sissons joined Rainbows Hospice as CEO in June 2018, after working

as Director of nursing for Marie Curie Cancer Care for five years. Her career

that spans commissioning acute services and the independent sector and

she has represented nursing and end-of-life care at the board and national

levels across the UK. She continues to play a key role in nursing leadership

and is an active council member at the Royal College of Nursing. She is

passionate about developing others and brings a wealth of knowledge

about practice development and professional standards. Unafraid of a

challenge, she has recently embarked on a professional doctorate bringing

the nursing voice to the debate on excellence and nursing care in the

palliative care sector. She is also a Florence Nightingale leadership scholar.

e:

dee.sissons@rainbows.co.uk

Dee Sissons

Rainbows Hospice for Children and Young People, UK

The changing face of children and young people’s palliative care:

Safe staffing the missing link

Journal of Primary Care and General Practice | Volume 2

J Prim Care Gen Pract, Volume:2