neuroscience-psychiatry-2018-posters

Journal of Neurology and Neurorehabilitation Research

Volume 3

Page 44

allied

academies

J u n e 2 8 - 2 9 , 2 0 1 8 | D u b l i n , I r e l a n d

Joint Event on

NEUROSCIENCE AND NEUROLOGICAL DISORDERS

PSYCHIATRY AND PSYCHOLOGICAL DISORDERS

International Conference on

ALZHEIMER’S -LIVING WITH THE DISEASE

Caron Leid

Aspen University, USA

hen my mother was first diagnosed 17 years ago, at the age of 57, I had a new-born and was propelled immediately into the

sandwich generation. There was few a resource or information surrounding living with the disease in the year 2000. The author

started journaling her experience more for cathartic purposes, and then had the courage enough to publish it in hopes of helping

others. Since then, she has written several journal articles on the topic of Alzheimer’s disease and living with the disease. She

has appeared on CTV National News; she has worked with the Alzheimer’s Society of Canada and has spoken at an International

Alzheimer Disease and Dementia Conference in 2015. 17 years of the day to day emotional, mental, and physical management of

the disease has provided me a unique perspective and the ability to help educate others. She is presently working on her second

book on the disease and revising her first book to include the palliative care experience. She has seen this disease from the

beginning and now she is witnessing the end stages first hand. Her mother still resides with her, as their journey toward the end of

this disease. She is now an expert in living with the disease as a sandwich generation primary caregiver. She has gone through the

disease and all the collateral damage that takes place alongside of it, including compassion fatigue. Since her mother’s diagnosis

17 years ago of “Atypical” Alzheimer’s disease, and the fact that she has been in palliative care for two years in her home, allows

her to research the disease first hand, and show the world that caregiving is an integral part of managing and living with Alzheimer’s

disease.

J Neurol Neurorehabil Res 2018, Volume 3