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academies
Brain Disorders and Therapeutics
Mental Heal th and Psychology
5
th
International Conference on
Joint Event
&
Journal of Brain and Neurology| Volume: 2
November 05-06, 2018 | Edinburgh, Scotland
Concept mapping in context as a means of understanding how people with lived experience of mental
health problems make sense of citizenship
Gillian MacIntyre and Nicola Cogan
University of Strathclyde, UK
P
eople with lived experience of mental health problems
(MHPs) are often marginalised and have difficulty achieving
community inclusion. Citizenship provides a means of
understandingwhatisnecessaryformarginalisedindividualsand
groups to gain a sense of belonging within their communities.
Developing a model of citizenship provides a basis for
understanding the components of community integration and
social inclusion that are often underdeveloped for people who
experienceMHPs. Concept mappingwas used to produce visual
representations and maps of ideas of how people with lived
experience of MHPs made sense of the concept of citizenship
within the Scottish context. A mixed methods participatory
methodology was adopted, consisting of the following steps:
(1) preparation (including recruiting peer researchers and
identifying key stakeholder groups, (2) generating statement
items through focus groups (n =77) with key stakeholder
groups, (3) structuring through participants sorting and rating
statement items, (4) visual representation of statement items
through computation of concept maps, using multidimensional
scaling and cluster analysis, (5) interpreting conceptual maps of
citizenship, and (6) utilisation of a conceptual model. Reflecting
on adopting a concept mapping approach, it encourages the
expression of the conceptualisation of citizenship to be entirely
grounded in the language of the participants; and yields a
graphic outcomewhich displays all major domains of citizenship
and their inter-relationships. It entails cognitive processes that
involve decision-making about the relationship between fairly
abstract concepts and an ability to sort and make connections
between these. Consideration as to how this method could
be adapted to incorporate other forms of media such as art
and photography, when working with participants with, for
example, developmental and/or cognitive challenges, is an
exciting area that warrants further investigation. It is essential
that the conceptual model of citizenship is contextualised
through drawing upon the personal accounts and experiences
of participants within their given communities.
e:
gillian.macintyre@strath.ac.uk